Localized Scleroderma
Localized Scleroderma

Advocacy & Educational Resources 


american college of rheumatology logo

American College of Rheumatology

The American College of Rheumatology (ACR) is an ethically-driven, professional membership organization committed to improving the care of patients with rheumatic disease and advancing the rheumatology subspecialty.

Childhood Arthritis & Rheumatology Research Alliance logo

Childhood Arthritis & Rheumatology Research Alliance

The Childhood Arthritis & Rheumatology Research Alliance–or CARRA–conducts collaborative research to prevent, treat and cure pediatric rheumatic diseases.


Scleroderma Foundation

The Scleroderma Foundation is the national organization for people with scleroderma and their families and friends. Their mission is to provide support, education, and research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.

Fibrocell is honored to support these events:


Scleroderma Research Foundation

The Scleroderma Research Foundation (SRF) is America’s largest nonprofit investor in scleroderma research. Patients and their loved ones find hope in the fact the SRF is dedicated exclusively to funding medical research that will help them live longer, fuller lives.


Rare Disease Day

Rare Disease Day® occurs on the last day of February each year to raise global awareness of rare diseases. Learn more about this special day that honors those living with a rare disease and its impact on their lives.


National Organization for Rare Disorders (NORD)

NORD provides a unified voice for people battling rare diseases – those courageous individuals, and the parents and other caregivers seeking to help them, so that they won’t have to fight that battle alone.


Global Genes

Global Genes™ is one of the leading rare disease patient advocacy organizations in the world. Their mission is to build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activists for their disease.  


EveryLife Foundation for Rare Disease

The EveryLife Foundation for Rare Diseases is a nonprofit dedicated to accelerating biotech innovation for rare disease treatments through science-driven public policy.

Fibrocell is honored to support these events:


Pediatric Dermatology Research Alliance

In response to unmet research needs in pediatric dermatology that require collaborative, multicenter efforts, dermatology leaders created the Pediatric Dermatology Research Alliance (PeDRA) in 2012. PeDRA is the research arm of the Society for Pediatric Dermatology.